Let me tell you who rocks…

A friend posted this message titled Why Moms of Special Needs Kids Rock! 

I responded with what is below it…..

Why moms of special needs kids ROCK!
1. Because they never thought that “doing it all” would mean doing this much. But they do it all, and then some.
2. Because they’ve discovered patience they never knew they had.
3. Because they are willing to do something 10 times, 1,000 times if that’s what it takes for their kids to learn something new.
4…. Because they have heard doctors tell them the worst, and they’ve refused to believe them.
5. Because they have bad days and breakdowns and bawl fests, then they pick themselves up and keep right on going.
6.Because they manage to get themselves together and out the door looking pretty damn good. Heck, they even make sweatpants look attractive.
7.Because they are strong. Who knew they could be this strong?
8.Because they aren’t just moms, wives, cleaners, chauffeurs, cooks and women who work. They are also physical therapists, speech therapists, occupational therapists, teachers, nurses, researchers, coaches and cheerleaders.
9.Because they understand their kids better than anyone else does – even if they can’t talk or gesture or look them in the eye. They know. They just know.
10.Because just when it seems like things are going OK, they’re suddenly not, but they deal. They deal even when it seems like their heads or hearts might explode.
11.Because when they look at their kids they just see great kids.
This is to all the moms I know that ROCK!!!!!!

1. we only do as much as possible, gratefully the rest is done by our wonderful friends and family.
2. we beg, plead, and scrounge for more patience each minute……when necessary we retreat to the backyard or garage or bathroom with a towel over our mouth to scream until patience returns.
3. on 999 someone gives us the encouragement we need to “just keep swimming”
4. we might let the worst soak into our bones, but we bury those bones under lots of flesh, muscle and tough skin and never let the “worst” find its path to our hearts and souls.
5. because others give us their shoulders to cry on, hands to hold, & arms to enfold us and they pat our backs, dry our tears, restore our laughter, and sing us the song that has disappeared from our spirit.
6. hee hee…..I just think this one is ludicrous…..BUT….on a good day we remember our undies and manage to brush our teeth, we might actually use preparation H instead of Crest, but hey, the motion is there!
7. others seem to know we are stronger than we think
8. anyone with a child does exactly the same, just different parts of these things to varying degrees
9. and we love those who attempt to understand our kids and who can point out things that we miss because we are too consumed with whatever we are consumed with at the moment. there are some very good things I might have missed if they had not been pointed out to me by kind, compassionate others
10. It’s the Scarlett O’Hara philosophy….Thank you, Margaret Mitchell for getting me through each day!! ~~I’ll not think about that right now. I’ll go crazy if I do. I’ll think about that tomorrow. After all… tomorrow is another day.
11. AMEN, no argument from me!
This is why
friends of moms of special needs kids ROCK! you cannot possibly fathom the impact you have on our lives…..think about it, try to imagine it, then know that if you multiplied that by the largest amount possible it still wouldn’t be enough.

 

PS….my definition of friends: all of you who support me….including but not limited to, all family members, best buddies old and new, medical and educational people who happen across my path, anyone I run into in the Library, grocery store, pool, or parking lot who gets sucked in by my WOO 🙂Image

For the parents…

 “For the parents who had to wait longer to hear a first word, who spent more time in doctor’s offices with their child than on play dates, who endure countless bad days and the stares from other people…For the parents whose child’s first friend was their therapist….”

 A friend posted this and each of these items fit so accurately, but it made me want to add things like…..

…For the parents who learned early to lean on others, to accept the generosity and kindness of others,

For the parents who found out that there is no reason to try to do it all alone,

For the parents who know that whatever one does as a parent it will never feel like it is enough or correct, but is the best one can do at any given moment,

For the parents who know the value of  an occupational therapist, a speech path, a physical therapist, an appointment scheduler,a  PH ITINERANT TEACHER : ), a “play lady”, a Lekotek leader, a thoughtful caring teacher,a good-natured camp counselor,  a kind peer, a pleasant stranger, a compassionate listener, a hand holder, a good hugger.

For the parents who are repeat offenders of  DWW (Driving While Weeping) because they have found that the car was a place where nobody else would be affected by their tears.

For the parents who have learned and are willing to share the fact that discouragement might put you face down on a closet floor wondering if you will ever be able to stand up again, but that before you are needed to resume your role, you are not only off the floor, out of the closet and standing, but wearing a smile for when that yellow bus pulls up in front of the house.  

For the parents who have experienced more love than they thought possible, more heartache than they ever hoped to know.

For the parents who have been witness to strength to surpass muscle men, perseverance beyond measure, gratitude that touches the heart, smiles that are brighter than sunshine and courage equal to any Purple Heart Hero.

For the parents who are my peers, my supporters, my encouragers, my mentors, my role models, my friends.  

Cheers to you!

Do something good for yourself, you deserve it!Image

Great River Challenge, Year Four

427954_10152124509180693_1058970653_nbballOur fourth annual Great River Challenge brought a new perspective to this parent. The joy the players experience during these games has always been very evident, but what I witnessed this year was the effect of that joy on the volunteers. We had incredible community support from the stadium, the families, the friends, the sponsors, Hy-Vee, Kohl’s, Assumption High School and Psychology Associates. On the faces of the volunteers I saw raw emotion; tenderness, surprise, pride, happiness, pure joy. I heard laughter, encouragement, cheers, and congratulations. At the end of the evening I spoke with a high school girl who told me that she had an amazing time, that she wasn’t sure if there were any players who had as great of an experience as she had that day. A father of a player shared with me that he had been involved with Challenger Little League in several different cities and that he was impressed with the support from our community, not something he had seen in the other locations. A woman who helped said that she plans to be there next year even if she has to use a vacation day from work to make it happen. The most interesting part of this to me is that I, a parent of a player, am extremely grateful for everyone who made this event possible; for the happiness, the fun, the joy it brought to our players, but this time I saw it come full circle– the happiness, the fun, the joy was experienced by the people who made it all possible. I understand that people give of themselves, their resources and their time out of the goodness of their hearts. I understand that they do this not asking, wanting, or expecting anything in return, but what I now understand is that it is not possible to be involved with Challenger Little League and not get something back. If you have a heart, which everyone who cares about CLL does, it is not possible to come away from these games without being touched.